The Quintessential NaNi

I’ve been searching for that “one” photograph that seems to be the “real” Naomi at this point in her life. I think this is it. (Click to enlarge.) I find this to be difficult with children’s photos. They are so constantly on the move, and rapidly changing, that capturing what we perceive as their typical appearance is difficult.

Here she is, as usual, bright and cheerful, loaded with energy, and has a fire in her eyes. I took this photo (once I could get her to stop jumping and spinning around shouting “Yippee!”) just after I told her we would be going sledding that evening.

Although now that I look at this carefully, I’m not sure her hair is quite right …

(I added the one on the right in April, 2006.)

Life Is Swell

Nichelle has requested that I post a few photos to show the extent of the swelling she is dealing with. We actually have one or two photos that are worse, but she doesn’t want those posted.

Since the return of the fibromyalgia symptoms in force, about the time NaNi was weaned, Nichelle has battled rather significant swelling at various times. This winter, it became much worse. At best, the swelling is bad; typically it is horrible.

Note the dramatic difference in the leftmost photo with the middle photo. These were taken only two days apart, on December 25 and 27, 2005, respectively. These primarily show the face, but the swelling involves the whole body. On most days, the swelling is very significant, somewhere between the rightmost photo and the middle photo.

We are awaiting an endocrinology appointment in about a week. The previous endocrinologist to whom Nichelle was referred refused to see her because there wasn’t anything in her records to indicate an endocrinological problem (for the most part, until recently, the swelling hasn’t been our biggest focus). A cardiologist she visited told her, “Sometimes my patients have swelling in their legs and ankles when they return from cruises because of all the high-sodium food.” Our excellent neurologist was more perceptive. Nichelle had brought these photos in to show him—he was stunned. He also pointed out that the swelling alone can cause a great deal of pain.

Our voluntary medical advisor/patient advocate Beth suspects Cushing’s Syndrome or some form of hypercortisolism. So far, Nichelle’s symptoms are consistent with that, including stretch marks on the skin in many places, and swelling varying in degree at different times of the day.


Nichelle spent a couple of hours last night going through photos from the past three years. There are obvious periods lasting several months when the swelling was very bad, and times when it was mostly gone. In general, the very bad swelling lasted much longer than the times without. There’s also a clear increase, over time, in what we might call “base level” swelling, but even within that ever-raising baseline, there are days when it is worse than others, as the photos above show.

I had actually forgotten how much smaller she was even within the past year. No amount of exercise or dieting seemed to help, either. She lost 30 pounds (after Naomi was born) doing the South Beach Diet, and was intensely exercising for an hour every day. Neither one of these things prevented the swelling or the fibromyalgia symptoms from returning, and exercise is supposed to be a very effective long-term treatment for fibromyalgia.

I’ve created a new category on the BLOG for posts related to fibromyalgia. It’s available on the categories list at the right, or from the bottom of any post classified as such.

(See related posts: What’s Wrong with Nichelle?, The Twins Are Back: What’s Wrong with Nichelle, Continued, and Pain; or view all posts categorized as related to fibromyalgia.)

Caption this Photo (of Naomi)!

We took this picture during David’s seventh birthday party. Nichelle’s suggested caption is below. Can any of you beat it?

“What do you mean I’ve had too much sugar?”

Now, let me go reserve a therapist for NaNi.

Sledding (2005–2006)

We have been leaving our sleds out most of the winter as offerings to the snow gods. So far it has been working, although I had to correct the kids on making the proper offering. Scattering the toboggans about the yard is not the way to get the snow gods’ attention: One must place the sleds vertically, up against the deck or porch railing, as if ready for instant use. You don’t want to get rain all winter, do you?

This is Naomi’s first year sledding.

Above: NaNi, at the bottom of the hill after one of her first-ever sledding runs. “Again!”

Sledding was great last night at Roby Park, in Nashua, which is not far from our house! The snow was perfect for speed; we were getting within about 20 feet of the fence at the bottom of the hill. Conditions should be same for the next few nights; I can’t go tonight. I might go on Tuesday, but will probably have too much work.

Isaac was practicing on a $1, small, narrow snowboard we got at a yard sale—it’s amazing how quickly he learns. He had several runs where he made it almost completely down the hill. I wonder how he’d do on a larger board with boot clamps. David tried it sitting and laying down. Isaac also challenged us to race him, sleds versus feet. He’s fast.

Above left: Isaac’s Calvin & Hobbes snowman (2 heads, 4 arms, etc.).

Above right: Our three-toboggan sled train. NaNi is in the front, Doug is in the middle (and providing the steering), David is in the back.

Naomi was completely thrilled. She always wants to go from the very top of the hill. I hold her sled in front of mine, which provides excellent steering control. The second day we went sledding, someone bumped her, and she was noticably timid for the rest of that day; last night she was fine. She seems nervous still while we are getting in position. I reassure her by explaining what I’m doing. “I’m just getting onto my sled. Don’t worry, I won’t let go of you. Remember, we won’t move until you say, ‘Go.'” And then she counts down (or up), and calls out, “Go!” and we’re off! Her first word upon reaching the bottom is, “Again!” She burst into tears when I said it was time to go home.

Above left: In the Wilcox backyard, the natives are restless. Isaac uses his bow and arrow to enhance his Mutant Snow Goon.

Above right: Even though our sledding was done, and we were all a little wet and cold, NaNi insisted on continuing to play outside.

Earlier this year, I took some pictures, and even have a short video clip of one of Naomi’s first sledding runs (if for nothing more than freaking out Nichelle). I’ll have to see what’s worth posting. (Editor’s note: I looked; the video isn’t that great, and the photos are mostly dark or blurry. It was cold when I took them! I’ve added the one that was decent.)

(New photos above added January 25, 2006.)

Domestic Security Consultant Visits Wilcox Home

On Friday, the Wilcox family received a long-awaited visit from Clover, a border collie who is employed as a domestic security consultant north of here.

After an intimidating first meeting, Naomi and Clover became fast friends. NaNi adopted the same pose as Clover for all their photos together. (Note that Naomi is wearing some of her new Geekwear: a “Version 2.0” t-shirt.)

More hints has said that Clover presented on such important topics as stick-fetching, ball-fetching, stick destroying, Nerf-ball chewing, human herding, neighborhood patrols, criminal background checks, and indicating when one needs to use the little dog’s room. (I am told by Matt Camillieri that other canines, such as Winnie Sohmer, are not so good at communicating such a vital topic.)

Clover is a good dog.

Christmas Glimpses

It is Christmas morning in the Wilcox home. The children awoke early, of course, but not too early. Nichelle and I slept until 8:30. I could have used another hour, because I was too excited to sleep Christmas Eve, and stayed up until around 2:00 a.m.

We let the kids open their stockings before church, and one other gift (chosen by us) on the way to church (John missed out on that one because he left for church earlier to navigate for my sister Cindy). I was thrilled to see the church auditorium packed. Normally on Christmas Sunday we have a lot of people traveling, so I expected the attendance to be down. (Of course, there are people traveling to our area as well, but generally not as many.)

Above left: The portion of the Wilcox family spending Christmas in Nashua with us. Back row: My sister Joyce Thorne, my daughter Naomi, my niece Jennifer, my wife Nichelle, my nephew Andrew. Front row: My son David, my son Isaac, me, my sister Cindy (Jenn and Andrew’s mother), and my son John.

Above right: David, Isaac (mostly obscured), Andrew, Naomi, and Jenn opening Christmas stockings. Naomi is eating a chocolate chip muffin.

When I was growing up, I never slept past 6:00 on Christmas morning, even though I never could fall asleep before midnight. Thankfully, my own children are a bit more reasonable, although they have resorted to sending notes in attached to Isaac (2 years old at the time), and playing the trumpet outside our door. (Actually, that was my nephew Andrew.)

Did you know the cardboard box has been inducted into the National Toy Hall of Fame?

Naomi singing, dancing and spinning around to Tish Hinojosa’s Spanish Christmas song, “Milagro”:

Milagro, milagro, es la Esperanza
Milagro nuestro es la Navidad

(A miracle, a miracle is the hope …
The Nativity is a miracle meant for us)

Above left: A new sombrero ranchero and the Lego AT-AT. Nichelle is good to me!

Above right: Naomi with her new Navajo Barbie. (Yes, I let her take it out of the box. Calm, calm. Deep breaths. Slowly now. That’s better.)

Above: Naomi “helps” construct my new Lego AT-AT.

My niece Jennifer driving the Xbox controller like a steering wheel (and moving her whole body as if driving) while playing Burnout 3: Takedown with David and Isaac.

David wearing the mask from his Darth Vader Voice Changer helmet, singing, “If you’re happy and you know it, clap your hands …” while NaNi wore the cowl backwards, dancing to some inner music of her own.

Isaac’s shocked expression and dramatic dropping of the box when he opened his Carnivorous Creations terrarium.

Above left: Aren’t you a little short for a Sith lord?

Above center: Isaac dramatically reacts to opening a Carnivorous plants terrarium. (You should have seen his expression when he opened the RoboRaptor.)

Above right: NaNi models my new sombrero


Around Christmas, I always think about my favorite Christmas hymn: “God is Born” (“Bóg siÄ™ rodzi”). I’ve only got one recording of it, on an old cassette entitled “An English Christmas.” It is the National Christmas Hymn in Poland, where it originated. Here’s what I’ve been able to transcribe from the English version I have:

“God is Born”

God is born and night is shaken
He the Heaven’s King lies naked.
The living Word knows brightness darkened,
He the Limitless takes limit.
Born disdained yet worship given,
Mortal, yet the Lord eternal.
Now indeed the Word made flesh
Has come on earth to dwell among us.

What hast thou, O Heaven better,
God abandoned thy perfection?
Here to share the trial and sorrow
Of His poor, beloved people.
Suffered much and suffered dearly,
For we all were guilty sinners,
Now indeed the Word made flesh
Has come on earth to dwell among us.

Born into a common stable,
He is cradled in a manager.
How then tell me what surrounds you
Hay and peace and simple shepherds.
You were ones who had the honor
Him to greet, and kings came bowing.
Now indeed the Word made flesh
Has come on earth to dwell among us.

I love the old hymns that are filled with such great doctrine. (So much of our modern popular and sacred music is vacuous—or at best superficial—by comparison.) Here the subject is the Incarnation: God the Son lowering Himself to become one of us. Wow!

A Collection of Coolness

Star Wars:

Weather Control:

Natural Disasters:

Tall Buildings:

Robotics (especially for Neal Stephenson fans):

Space Slide Shows:

Another Visit from Tish Hinojosa

Friday night we headed down to the University of Hartford’s Wilde Auditorium to hear Tish Hinojosa—a Mexican-American folk singer whose voice I can only describe as hauntingly beautiful. (This description got me in trouble a few years ago when Nichelle failed to notice the word voice in what I had written.) Tish was accompanied, as previously, by the extremely talented guitarist/mandolin player Marvin Dykhuis.

This is the fourth time Nichelle, NaNi, and I have had the pleasure of hearing Tish’s gorgeous music live, and the third for the rest of the kids. (Naomi’s first experience was several months before she was born.)

We were a little concerned about taking Naomi. Last year she spent part of the concert in the lobby screaming. To our delight, NaNi was immediately enchanted by the singing and the guitars, and remained enthralled for the entire program.

The auditorium was over half full, but it’s a venue that feels delightfully cozy. The audience clearly adored Tish, several times breaking into applause at the beginning of a song. My favorite occurrence was the applause and cheers that broke out Tish sang the line “Our forefathers crossed the muddy line,” in “By the Rio Grande.” Tish interacted often with the audience, taking requests, and (as is typical of her) paying extra attention to the children she noticed. After croaking on a line at the end of La Llorona (due to having a cold), she joked that the weeping woman had died, but the cold did not seem to affect her singing after that.

Last year David got special attention because he was wearing my sombrero vaquero—Tish has a thing for cowboys. This year David (age 6—the old smoothie) asked if he could wear my hat again. I found him one that was his size, but he got embarrassed and wouldn’t wear it after we got in.

The concert was lovely, and the time flew by.

While purchasing Tish’s latest CD, “A Heart Wide Open,” I mentioned that “Frontejas” was probably my favorite, and that we were hoping for another all- or mostly-Spanish CD. She mentioned that she’s been talking about doing another one for five years now. I keep hoping.

For other fans who may be interested, here’s a rundown of what Tish performed:

First set:

  • Tu Que Puedes, Vuelvete (You Who Can, Return)
  • La Llorona (Weeping Woman)/Riendo El Rio Corre (Laughing River Running) medley
  • By the Rio Grande
  • Siempre Abuelita (Always Grandma)
  • Sign of Truth
  • Shotgun Ridin’**
  • The Kitchen Table**
  • Finding Paris**
  • Magnolia
  • Roses Around My Feet
  • West Side of Town

Second set:

  • Las Golondrinas (The Sparrows—Tish was kind enough to dedicate this to Nichelle*)
  • Something in the Rain
  • Never Say Never Love Again**
  • Derechos del Corazón**
  • Something More than This**
  • Con Su Pluma en Su Mano (With His Pen in His Hand—A corrido about the life of Amerigo Paredes)
  • Donde Voy (Where I Go—This was a big hit in Korea)
  • Taos to Tennessee
  • Closer Still
  • In the Real West
  • San Antonio Romeo
  • Reloj (The Clock)
  • God’s Own Open Road

Encore:

  • Song for the Journey

*I had written out this dedication as, “The most beautiful song I have ever heard, dedicated to the most beautiful woman I have ever known, my wife of 14 years, Nichelle”; Tish presented an introduction about the history and style of the song, and a little bit about its meaning in English, but remembered only to dedicate the song to Nichelle, rather than my longer, sentimental dedication. (This was just as well: My sappiness would not have paired well with her introduction.”)
**From Tish’s newest album, “A Heart Wide Open.”

Hi, Slacker!

Naomi turned two on Thursday. Friday night, when I got home, she echoed David’s typical greeting of “Hi, slacker!” and has been saying it—with immense glee—ever since. Give it a listen: naomi_hi_slacker.mp3.

After a day, her pronunciation became even better: Give it a listen: naomi_hi_slacker_2.mp3.

Naomi even made up her own song using her new favorite word:


(Click here, or right-click and save if the above video won’t play, or you can view it on Google Video.)

Google Video is now including embedding code. Here it is below:

Cuteness

NaNi (Naomi Nichelle) will be two years old in two days! I can’t believe how much she has changed in the past month. Her speech, which was just getting past the R2-D2 phase a month ago, is now exploding with sentences and more complex thoughts, and with more new words every day than we can list.

Every morning when one of us goes to get Naomi out of her crib (surprisingly, she hasn’t climbed out of it yet), she will not even say hello, but asks for the other parent. If I go in, her greeting is, “Where’s Mommy?” If Nichelle goes in, her greeting is, “Where’s Daddy?” Last Sunday Nichelle and I decided to go in together to see what her reaction would be. She wouldn’t say a word, not even hi.

Today Naomi received a birthday card from Grandma Wilcox, and it contained a $5 bill. She was excited to get mail. (Nichelle sang the “Mail Time” song from Blue’s Clues.) As Naomi opened the card, she saw the $5 bill, grabbed it, held it up to her face, gave it a hug, and then gave it a kiss. Yikes!

Nichelle had fun creating—and has fun maintaining—NaNi’s classic beaded hairstyle.

As for me, I’m keeping my shotgun in good order. Those boys will be coming to the door any day now; I want to be ready.